Sep 262012
 

I made it :-). What an amazing and unforgettable experience. Here are some of the highlights;

– Meeting some of the 22 other walkers in the Nystagmus Network team at a pub in Waterloo Station for pre drinks! What amazed me was that as I self-consciously walked from my hotel to the pub dressed as a carrot, no one batted an eyelid. Anything goes in London!
– Meeting John Sanders from the Nystagmus Network (who I’ve been in touch with many times since Jack’s diagnosis) and Northwick the Bear (who I’ve enjoyed reading about in the quarterly Nystagmus Network newsletters).
– Lining up with over 400 other carrot walkers and being presented with carrot whistles (made from real carrots).
– Seeing former Paralympic swimmer Chris Holmes, who lost his sight at age 14 and then went on to win nine gold medals, officially open the event.
– Eating several different carrot cakes, carrot and coriander soup, and cookies at the three pit stops – yum yum.
– Speaking to other parents and people who have nystagmus themselves about their experiences. I also learnt about several other eye conditions including Birdshot Uveitis and Retinus Pigmentosa.
– Some Nystagmus Network members on the walk bumped into Liam Gallagher from Oasis on his 40th birthday.
– Seeing the sights in Lonon in the dark, and the view of the sunrise over the Tower Bridge was amazing.
– Walking with Steve and Rajni who kept me company well into the morning – thanks for keeping me motivated :-).

Here are links to the Carrots NightWalk Facebook group and Nystagmus Network photos.

A huge thank you to everyone who has supported us, Nystagmus Network and Fight for Sight.

And great news, Fight for Sight are hoping to take the walk national next year so watch out for a Carrots NightWalk in a city near you :-)

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