Ben Haynes is a 22 year old singer/songwriter with nystagmus. He is a true inspiration to others with the condition. He has a professional website where you can listen to his songs.
Earlier today Mum of 10 year old Wilson sent us a link to this inspiring RNIB (Royal National Institute for the Blind) video explaining how technology is helping her son with nystagmus at school.
2012 has been a great year. Spending time with Jack and Isaac has been fast paced and very rewarding.
Isaac is almost five months old now! We are still not sure whether he has nystagmus yet. I (Mum) suspect he does, whilst Dad and some other family members don’t.
We highly recommend the Noah (National Organization of Albinism and Hypopigmentaion) “How we See” video from Amy’s recent blog post Noah Conference How We See on 16th July 2012.
This evening we saw Jack’s eyes move the fastest they ever have.