Ben Haynes is a 22 year old singer/songwriter with nystagmus. He is a true inspiration to others with the condition. He has a professional website where you can listen to his songs.
This year, on Wednesday 5th November it’s the world’s second international Wobbly Wednesday – a very special day for all of us who have involvement with nystagmus. The day is dedicated to raising awareness of the condition and so far celebrations are set to go with a bang!
Jack was three in December. Over the past year he’s continued to do well and exceed our expectations. The terrible twos’ have been tricky at times (help!), but we think this is more to do with personality (Jack remains very independent!) and age rather than sight.
What a special and successful day this first ever international nystagmus awareness raising day has been
On 21st January 2011, a lady called Jo wrote a post on her “The Shifty Eyes Blog” that touched our hearts and gave us hope when Jack was first diagnosed.
We have recently had some great news about new baby Fletcher and Isaac …
On Wednesday 6th November 2013, Nystagmus Network is organising the first ever International Nystagmus Awareness Day.
We are very pleased to announce the arrival of Fletcher – a new brother for Jack and Isaac – who was born earlier this month.
This is my post to thank Amy at Through the Eyes of Liam for issuing me this award!
2012 has been a great year. Spending time with Jack and Isaac has been fast paced and very rewarding.