Oct 142014

This year, on Wednesday 5th November it’s the world’s second international Wobbly Wednesday – a very special day for all of us who have involvement with nystagmus.  The day is dedicated to raising awareness of the condition and so far celebrations are set to go with a bang!  Continue reading »

Feb 072014

Following our last post about Wilson using an I-Pad to help him at school, his Mum recommended more education resources on the RNIB (Royal National Institute for the Blind) website. We’ve been impressed by the up to date content across the site, and here are links we’ve found particularly useful/interesting so far … Continue reading »

Dec 282012

At the Nystagmus Network Open Day, a speaker on genetics explained that with nystagmus the most common genetic pattern is X linked, but it can also be autosomal recessive or autosomal dominant.  It made us curious to find out more about our situation and this post explains what we’ve learned …    Continue reading »

Oct 312012

On Saturday 20th October I went to my second Nystagmus Network Open Day which was held in Manchester this year.  The purpose of the event is so people can meet and share experiences.  It’s also a great opportunity to find out more about current research and ask questions to medical experts.   Continue reading »