We have recently had some great news about new baby Fletcher and Isaac …
On Wednesday 6th November 2013, Nystagmus Network is organising the first ever International Nystagmus Awareness Day.
We are very pleased to announce the arrival of Fletcher – a new brother for Jack and Isaac – who was born earlier this month.
In the Back to Bounce post on 13th May last year I said I met a lady who works in the Sunderland Children’s Sensory team for Visual Impairment, and she offered to do an assessment of Jack at our home after meeting at the Bounce session.
Jack had his fourth appointment at Sunderland Eye Hospital in April. He saw three Doctors.
This is my post to thank Amy at Through the Eyes of Liam for issuing me this award!
2012 has been a great year. Spending time with Jack and Isaac has been fast paced and very rewarding.
At the Nystagmus Network Open Day, a speaker on genetics explained that with nystagmus the most common genetic pattern is X linked, but it can also be autosomal recessive or autosomal dominant. It made us curious to find out more about our situation and this post explains what we’ve learned …
On Saturday 20th October I went to my second Nystagmus Network Open Day which was held in Manchester this year. The purpose of the event is so people can meet and share experiences. It’s also a great opportunity to find out more about current research and ask questions to medical experts.
Last week Jack, Isaac and I (Mum) attended our third Leicester hospital appointment to take part in the OCT Hand Held Scanner Trial, have tests for genetics research, and find out whether Isaac has nystagmus or not (based on results from the last appointment).