Welcome to our web site “Living with nystagmus”.  In March 2011 our three month old son Jack was diagnosed with congenital nystagmus.  Being able to access articles and people’s experiences (both parents and those with nystagmus themselves) has been incredibly useful and a huge comfort.  The purpose of this website is to share what we’ve found most helpful and document our story as it unfolds.  We welcome hearing any comments, questions or experiences you’d like to share in the blog section, or please feel free to send us a private message in the contact us section.